Birth Defects Awareness Month Highlights Resources in SC

News Summary

January is recognized as Birth Defects Awareness Month in South Carolina, initiated by Governor Henry McMaster. This observance aims to disseminate essential information and provide resources to families impacted by birth defects, which are the leading cause of infant mortality in the state. The story of Roczen, a young boy facing multiple challenges due to various birth defects, underscores the importance of early intervention and community support. Various programs and resources are available to help families navigate these difficult circumstances and build a supportive community.

Birth Defects Awareness Month Shines a Light on Essential Resources for Families in South Carolina

Columbia, South Carolina – This January, South Carolina is putting the spotlight on an important issue that affects countless families across the state. January has been officially proclaimed as Birth Defects Awareness Month by Governor Henry McMaster, aiming to raise awareness and offer support to families with children born with birth defects. This effort is crucial since, in South Carolina, birth defects are recognized as the leading cause of infant deaths, which highlights the need for education and resources.

Understanding the Impact of Birth Defects

Birth defects can lead to significant challenges for affected individuals, often resulting in lifelong difficulties. For many parents, discovering that their child has a birth defect can be overwhelming, leading to feelings of isolation and uncertainty about the future. Did you know that approximately one in every 33 babies born in South Carolina is affected by a birth defect? This staggering statistic serves as a clarion call for communities to come together and support one another.

A Story of Resilience: Roczen’s Journey

One story that emphasizes the struggle and triumph of families dealing with these challenges is that of Roczen, a five-year-old boy who has faced a series of obstacles since birth. He was born following a traumatic delivery, which led to a thrombolytic stroke that has affected his brain’s blood supply. Tragically, Roczen’s mother passed away when he was just 19 months old, leaving him and his family to navigate his multiple conditions, which include cerebral palsy, a rare form of epilepsy, respiratory issues, and a right-sided deficit.

With the help of continuous support, Roczen receives occupational, speech, and physical therapy along with additional assistance from daytime nurses and nighttime aides. The South Carolina Department of Public Health, as well as state and federal funding––which includes a significant CDC grant of $300,000 per year––plays a crucial role in covering these necessary therapies and support services for Roczen and many others like him.

Available Resources for Families

Families like Roczen’s can find a wealth of resources at their disposal. The South Carolina Department of Disabilities and Special Needs (DDSN) provides early intervention services for children ages 3–6, encouraging parents to reach out via their toll-free screening service at 1-800-289-7012 to learn more about the help available. The BabyNet program offers free early intervention services specifically for children with developmental delays or conditions, ensuring families can access critical support without the financial strain.

This month serves as a reminder of the importance of early intervention, which can be fundamental in helping children reach their full potential. Additionally, health initiatives such as newborn testing for genetic disorders and the Medicaid program, which covers around 60% of births in South Carolina, show the state’s commitment to supporting new families.

Community Support is Key

Community support is vital for families navigating the complications that arise from raising children with birth defects. Roczen’s grandmother, who is his primary caretaker, acknowledges the undeniable role that early interventionists play in helping families. She believes that making resources more accessible and affordable would transform their experience significantly, including the need for affordable specialized formula and therapies.

Moreover, she advocates for the inclusion of sign language in school curricula to better accommodate children with disabilities, helping foster a more inclusive environment for everyone.

Encouraging Open Conversations

Finally, it’s essential to promote open conversations about birth defects. Transparency and understanding can significantly reduce the stigma surrounding these conditions and help foster a more supportive community. By joining together, families and communities can create an environment that encourages understanding and helps those affected know they are not alone.

This January, as Birth Defects Awareness Month draws attention to these critical issues, it inspires us all to extend our hands and hearts to those who need it most. Remember, by staying informed and supportive, we can help nurture such children to have the best future possible.

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Additional Resources

• WLTX: He is a Bundle of Joy
• Cola Daily: Raising Awareness About Birth Defects in SC
• Wikipedia: Birth Defect
• Encyclopedia Britannica: Birth Defect
• The State: Community Efforts and Birth Defects